Glad to hear you're finally getting some answers! It's difficult when all your tests come back negative, but you know something is wrong. I haven't had a single positive test!! I'm glad my neuro is treating me based on symptoms alone.

Being fairly new to the MG thing I still have alot to learn. I've read about many forms, but you are the first person I've seen post about limb-girdle MG, now I'm off to gather more info!!! Most of my symptoms have been in my arms, legs and torso from the very start. I used to say to all the doctors and nurses I was weak from my neck to my knees.

Even on Mestinon I still have a great deal of weakness in those areas. I don't have to increase my activity that much for my muscles to fatigue, even washing a few dishes has become a major chore. If it turns out to be limb-girdle MG what type of treatment will you be placed on?

Good luck with you upcoming appointments, hope you get some more answers..