Recently my Neuro told me that there are alot of patients like us. He has several patients with all over burning, spasms, twitching, parasthesias, who DO NOT have loss of sensation. He said that the medical community do not have a diagnosis for this yet, and that he thinks it will take 10-15 years before they have a Name for it. But he said that even if they did have a name, the treatment is still just pain management.

I would imagine that if we all applied to the NIH, they would be the ones to come up with a Name for this?