Thread: Even though...
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Old 01-04-2011, 11:51 AM
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mrsD mrsD is offline
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mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

All of the immune suppressing drugs are "frightening"..I think.

If you read the MG forum here, they use Cellcept, or Imuran, (not often Plaquenil), and those have severe side effects.

Methotrexate is another. Or Cytoxan...both chemo drugs.

IMO there is no easy treatment.

I've looked at the forum you mention at times... I get the feeling some of them have mixed problems. They tend to fixate on that diagnosis only and medically several other things may be going on at any one time. Once a person gets that precious "diagnosis" they tend to ignore other things that may be outside of it, and include other symptoms by mistake. Over time with a difficult problem people learn to fixate on every little thing, and that can be counter productive too.

In community work, I rarely saw Plaquenil used. It is not a common drug anymore. (in the past it was, but treatment protocols do change). It was most commonly used for Lupus.
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Sheltiemom18 (01-06-2011)