[QUOTE=debbiehub;731819]
Quote:
Originally Posted by momofrsdsjk
Debbie Thank you for responding, I don't know how to pm. This is my first time trying to connect with anyone on this site, even tho I have read your stories. Your stories have been my guide on trying to understand my daughter and what she is going thru, for that I thank ALL of you. She went to Dr Rhodes in Nov, his machine worked for a few days, but has not offered any relief since then. I wish I could pm you...
Thank you
barb[/QUOTE
Do you contact him and tell him its not working- he will give you different protocols to try-i contact him every few days
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Debbie, yes her husband contacts Dr Rhodes, he has changed protocols on the pm cycle but not on the am cycle since Nov 17th, Dr Rhodes keep telling her she has to be off all of her meds before the machine will help her, so she weaned off everything except lexapro, she is currently withdrawing from oxy,,,but getting no relief from anything else makes it even more difficult..Dr Rhodes told her it could take 6 months for the machine to work. even maybe a year...not sure she can take a year of this let alone 6 months...everytime we try something new, she seems to get worse, or it spreads...anyway thank you for listening..
barb
Gabby, we live in san diego area, she has had ketamine at ucla, with Dr Prager, works for awhile, but very expensive, has a scs implanted, but stopped working 1 month after it was placed. we have gone thru alot of options, but she continues to get NO relief....Again thank you for listening
Barb