Hi,

I'm a sero-negative Sjogren's whose first major symptom was small fiber neuropathy, non-length dependent, that was diagnosed by neurologists via skin punch biopsy right away because my skin was "on fire." That's gotten a lot better, but still have skin discomfort and am now completely photosensitive.

Have the dry eyes, mouth, nasal passages, airway, skin.

My neuros all have said that small fiber neuropathy is "huge" in people with Sjogren's. So the community is aware of the connection, but as there is no cure for Sjogren's, the neuropathy is only treated symptomatically with anti-depressants and anti-seizure meds. Sometimes chemo drugs are used. I'm afraid of all of them because of the side-effects.

However, I believe my neuropathy improvement is due to taking specific vitamin supplements (not herbal anything). B12 as methylcobalamin, CoQ10,
R-alpha lipoic acid (not "S"), B1 as benfotiamine. Taking too much B6 can cause toxicity, so I stay with a good multi-vitamin/mineral one a day formula.
Oh yeah, and the fish oil/Omega-3 the rheumatologists prescribed.

Lily