I was diagnosed with myasthenia gravis when I was admitted from a neuro appointment in 08. The 'usual' tests came back negative. But my breathing is an obvious sign of something. I have degraded alot and saw an ENT last week for what is happening my my throat, aournd losing ability to talk and that swallow is worse. He asked me if I was tested for bulbar ALS. I have to admit this scared me.
Annie59
Quote:
Originally Posted by Diogenes
If your worried you have ALS, there is another condition that has the same symptoms in the beginning. I can fool doctors at first.
The condition is Beneign Fasciculation Syndrome (BFS). there's a wiki definition and a forum. I was told I didn't have ALS 30 years ago, but they couldn't explain why I had early symptoms of it.
Now days more and more neurologist know about it (but defintely not all). If your getting checked for ALS or your neurologist think its unlikely, then ask about BFS
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