Sorry I didnt get back for more on this. I have not been well, not doing as well since I saw the ENT. I am assuming it is still the anesthesia and hoping it passes soon. I had to skip going out with my home aid yesterday to tan cause my breathing got worse just walking across the room so getting changed to go out and do that was out of the question. It reminds me how I modify my activities out of my need to stay out of the ER cause I really dont have doc that I trust for a situation of my muscle/breathing neeeds. yes I have my beloved pulmo who has done tons to try and get me more tests and closer to a diagnosis but he cant do it all.

This level of being worse has me scared. I called an old friend who fought years to get her mom diagnosed. Finally they diagnosed her with Nonhodgkins lymphoma. It was unbelievable how they literally had times they took her to the hosp so sick she couldnt walk and yet due to tests now showing clearly they would send her home. I remember this at times when it seems I will never a diagnosis and help.

Annie59