Originally Posted by Karenswails

I was diagnosed with moderate to sever idiopathic small fiber neuropathy at the Cleveland Clinic in November of 2010. After 2 years of going to many doctors for my symptoms; One doctor said a pinched nerve, one doctor said carpel tunnel and sent me to a specialist at the clevland clinic and that doctor from the said diabetes, yet another doctor from the cleveland clinic said maybe lupusor fibromyalgia and sent me to a dermatologist then they checked for arthritis. Every test they did to see if any of the above named disorders was the culprit of my symptoms, and they were all ruled out after countless amounts of blood work and urinalasis came back normal. Since April of 2010 I have had a full body MRI, a Qsart test, 2 EMG's. It took a skin biopsy to figure it out. I am on 3600 mg of Gabapentin (generic for neurotin which is the maximum dose). 100 mg of amitrptyline, 60 mg of cymbalta and 1000mg of vicodin 2 or 3 times a day for the pain. It is not really helping. I have good days and bad days. And I have lost my job do to my symptoms one week before Christmas. My right hand, right shoulder, right elbow and my left foot are affected. The burning sensation is unbearable. And yes, I do have trouble with vision being blurry and trouble hearing. I also have hair loss, excessive sweating, short term memory loss and trouble leaking urine. One minuet I am cold then the next I am hot. And I am tired all the time. I drop things a lot because I cannot feel my hand. This has been an awful flare up. Even my clothes drive my skin crazy, i rarely wear my jewelry because it also drives me crazy.