I was just diagnosed. On 23rd of November, 2010. so far i have read everything possible that can be read. I know that it is a very frustrating disease and that can ruin your spirit, but I am not giving up. I feel some incredible happiness because I finally know, after six months of telling me it is nothing, that i have just lost some confidence, i finally know what is wrong with me and I am happy that there is a cure. i have the best doctor in the world. Actually I come from Macedonia, it is a small country in the Balkans, and feel overwhelmed because of this opportunities that I can talk with people all over the world.
Myasthenia is boring, but not so dangerous. The most important thing is to learn how to live with it. so far I am great, and getting better every day. I take only prednisone, started from 120 mg, now I am on 65, and getting off 5 mg a week, till I get to 20mg. I had some fatigue in my knees, but these last three days it is gone.
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