First - welcome radarmamma! and thanks AnnieB3 for reposting!!

My 'path' started out similarly to yours, though my symptoms were somewhat different. My brain and neck MRI were clean and nerve conduction test was not bad. So, my PCP sent me to a rheumatologist who did tons of blood tests, said nothing remarkable showed up...I probably had CFS...and did I want a perscription for Lyrica!! (NO thank you)

At that point, I sort of gave up for a bit. But I was getting worse so I looked for a new neuro to begin again!! In my first appointment, that neuro said that clinically she would dx me with MG -- and immediately ordered the blood and nerve tests to confirm dx.

The difference? The second neuro has experience with MG and treats many MG patients. My symptoms made total sense to her and, by observation and a quick exam, she was quite certain of the dx.

Try to find a neuro who is currently treating MG patients. Your local MDA chapter may be able to point you in the right direction. It's amazing to me how many neuros are apparently not comfortable considering MG as a dx.

Good luck - keep trying!