Hey guys- just wanted to give a little update

I'm 2 weeks away from infusions, and not doing too bad. I have been excersizing quite alot so that Is incouraging, although I am getting tired more fast.

My neurologist would like to preform a muscle biopsy to see if I have anything else going on. I am having very bad muscle twitches/spasms and I'm not sure what to do about them. More calcium, less prednisone? What do would you suggest? Also she wants to have me go on a clinical trial for a new medication that has been found to help- hopefully.


Yet I think I am on the road to being healthier but as I'm taking a semester off that is hurting me mentally. -need to get out.


Anyway- I am headed to bed. Late for me and I
Getting up to go to the gym at 6:30.



Hope you are all faring well.