How interesting. I've never been diagnosed with TOS. And I don't have all of the symptoms, for instance, when I hold my arms up my hands don't go numb or turn white or whatever they are supposed to do to confirm the diagnosis.

But since I've had RSD, I get severe migraines when I use my arms for anything strenuous. (I had never had a migraine before I had RSD!) The migraines hit in the middle of the night or in the morning, 6-12 hours after the activity. I've learned to be really careful with how much stress I put on my arm and shoulder muscles and to not do anything that causes vibrations - like raking - to go up my arms into my neck and head. My RSD was from a rotator cuff injury in Nov of 2006. I also sleep with a foam cervical pillow to keep my neck straight, because my neck is also a weak spot for me.

My PT gave me neck stretches to do that have helped enormously. I try not to let the muscles in the side and back of my neck get too tight because I think that could also be a contributing factor for my migraines.

I am much better than I was because of low dose ketamine infusions (I just had #32 on Friday), and my functionality has slowly started to improve. But I still need to be really, really careful with my arms. I was a lifeguard on the beach when I was younger, and really built, but now my shoulders and arms are all skinny from disuse. Its kind of a bummer...

Good to see you posting Kathy, welcome back!! XOXOX Sandy