Thank you, you are really a wealth of information. That day in the lab, they had so much trouble reviving me they called the Rapid Response Team. I was in a hospital and they rushed me to the ER. I got the MG diagnosis about 2 days later.

All my neuro doc knows is that I was having swallowing / choking issues. He doesn't even know the rest. I had no idea they were related, or anything other than Lyme related, until he called to say I had MG and I started to research. Then I saw I had all the advanced symptoms, and these probably were not all Lyme related. I have yet to even discuss them with him. I will call Monday and make an appt. He is two hours away and I've had so many appts and IVIG two days every other week...I have to get in to him though.

He knows some of the symptoms from his two years of treating me for Lyme disease, but they were always in the Lyme context. I thought the shortness of breath was a Babesia symptom ( another tick borne disease.) I've been to the ER multiple times very short of breath, not knowing I had MG, and they always treated it as rule out a heart attack. There was always some chest pain too.

I guess it's hard to know when to go to ER because I've lived off and on in this state for 3 years. But now much of it is worse. The arm and leg weakness is much worse. My vision is worse. The breathing is definitely way worse.

Right now, I can count to 11 with a deep breath. I have never gotten higher than 20 since I read about the test but the last two weeks, never higher than 15 and usually can't reach that.

So when you are overall exhausted, does it affect everything? Your breathing, etc? Is exhaustion what can put you into a crisis? I guess I just need to understand this. If I feel any worse today I will go to the ER...but can you tell me exactly why I am going? Is it the five days of not being able to ambulate alone, the severe weakness, what number should I be able to count to, etc?

I've had several times I've been very close to going because of my breathing but then I turned on my side and fell asleep and it settled down.

Thank you so much for your help. I hope it makes sense that I'm just confused, thinking I've been this way for years. But really I probably haven't, maybe my MG has worsened and before it was more Lyme disease. I just don't know. I know vision was not a problem like it is now, nor was choking. So I do think it's getting worse. I don't think breathing was bad like this, either...or the severity of the arm and leg weakness.