Abby, I was glad to see this. It is important to share stories like this to help normalize the situation. Folk like myself who are so deeply weiry from dealing with situation need to know other are out there. I experience this first as a trauma survivor. One of the biggest tools that help are groups where this very thing is done....Sharing of stories.
I just purchased the book at Amazon as with me on disability every penny counts. They had a used copy.
Good one Abby!
Annie59
Quote:
Originally Posted by Stellatum
This is a book by a woman who was eventually diagnosed with an atypical form of myasthenia gravis, after years of being told her illness was psychosomatic. It was so severe that she became a quadriplegic, and actively pursued euthanasia. Her book is subtitled "A Journey into Uncertainty and Prejudice in Medical Diagnosis." http://www.cornellpress.cornell.edu/...taf?ti_id=6014
I hope this doesn't discourage anyone, but I post it here because I know it will be of interest. Also, I really do think that books like this are heralds of change in the medical system. The success of this book at least means that people are willing to listen.
My thoughts are with those of you who are still fighting for a diagnosis. Don't give up.
Abby |