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Old 01-10-2011, 08:24 PM
Stellatum Stellatum is offline
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Join Date: Feb 2010
Posts: 1,215
10 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
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Quote:
Originally Posted by AnnieB3 View Post
Thanks for posting this, Abby. I couldn't deal with it at first - it hits too close to home.
Yeah, I sort of hesitated to post it for that reason--that it might hit too close to home for a lot of people here. In the end I decided the main message is one of hope, because the book is published in a series called "the culture and politics of health care work." It means that stories like this are starting to get through to the medical profession.

The excerpt I read really stunned me. Since I'm seronegative and my symptoms are atypical, I could easily, easily, easily have been in her position. The neurologist who diagnosed me said he's seen 800 MG patients, and not one of them has my gait. I found out afterwards there's a known psychogenic lurching gait syndrome. So I feel like I dodged a bullet. And as always, I'm rooting for everyone on this list whose symptoms aren't being taken seriously.

Abby
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