Quote:
Originally Posted by Feel the Burn
It is hard to try and stay positive when your dealing with pain and no idea why your suffering and you cant get a decent D;x of what the heck is going on, I have SFN, and I swear its killing me a little bit every day, how can you describe the pain and the weird body symptoms to your loved ones,?, I cant do it, there are no words to describe it, I dont remember when I laughed hard either at somtthing, when you are in pain you are just trying to get to the next minute
Getting back to the old normal self for me is a dream that I cant see coming true, eventually the neuropathy will win out,, and then what,? it surely is no way to live,
Even waking up in hte morning you know its going to be a repeat of the day before, I cant drive anymore so I;m stuck in the house all day with just my dog and a computer and my pain, its no wonder I want to go to bed at 7pm or sooner,, it takes everything out of you just to endure the few hours we get any sleep, and to get up and face another day of this nonsense
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Hi Feel the Burn,
The
big smelly fish is that your pain is not being adequately addressed/treated. This is something to hash out with your docs (which causes me to wonder, if you can't describe your pain/symptoms to loved ones, how do you describe it to your docs?) With docs, it's not just describing pain as symptoms (which are subjective) but perhaps
more importantly, what effects pain is having on your day-to-day life.
I find some good ideas googling:
describing pain and
adjectives describing pain
We all have to be our own advocates; if they're not doing their job, it may be time to consider whether they're the right doctor(s) for you.
Also, has anyone suggested pain counseling? I know it's not for everyone, but I also know some folks for whom it's made a huge difference.
If conditions were different, I might take it as a personal challenge to give you a big belly-laugh, but since you have a dog, I think that job is likely taken.
Doc