Grand Magnate
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Join Date: Feb 2009
Posts: 3,306
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Grand Magnate
Join Date: Feb 2009
Posts: 3,306
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Mangi, Get a copy of your breathing tests. That would be very useful in figuring out if you have a restrictive breathing problem or what is going on. If they didn't do the MIP and MEP, you should still have those done.
MG is like ptosis. If you aren't looking for it, you may not "see" it. So if the ENT wasn't looking specifically for an MG issue, he may not have. Or you may have been okay when you had the appt. MGers aren't always weak, it fluctuates.
And I have to say that "vocal cord dysfunction" doesn't really come with breathing problems!
A primary doctor can run the MG antibody tests too. So if you want to start slow, go there first.
Annie
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