Quote:
Originally Posted by koilover512
One of the first forms of treatment for mg is the removal of your thymus gland. Neurologists believe that is the core cause of the disease. Most people with MG will have a tumor on there thymus gland so the removal of it is inevitable. But there are a percentage of people that do not have the tumor. Even though there is not a tumor on the thymus gland neurologist still believe one of the first forms of treatment is the removal of the thymus gland.
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koilover,
The information I was given by my neurologist and that I have learned from personal research is different than what you stated above. My neurologist only recommends the thymus removed if there is a tumor and he said that only a small amount of people with MG have a tumor (I think he said less than 10%).
I don't have a tumor in my thymus gland and its removal was never discussed.
It seems to me that different neurologists have different opinions about how to treat MG.
I don't like having a disorder that has so many unknowns and so much confusion around it.