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Originally Posted by peterpan
Hello all, First timer here. First a little history, My 14 year old daughter has what I believe are simple partial seizures, of the sensory, particularly visual type. (internet doctor here  (She has had a normal MRI but abnormal EEG. We are to have our first visit to a pediatric neurologist in two days.) Over the past 6 weeks she has had 0-8 episodes/day of completely unpredictable seizures consisting of 20-45 seconds of hallucinations, visual flashes of vivid dream-like "pictures/videos", deja vu, nausea, rapid breathing, and heaviness in her arms and legs, etc.
What advice might you all have regarding treatments, conservative, dietary or behavioral, and pharmacological. I have looked at a number of the threads here but I would like your perspectives on medications, side effects, risks, benefits, and stories of success after diet modifications etc. I suspect the neurologist will recommend medication and I would like to have some background advice or the right questions to ask before putting my daughter on meds. Thanks |
Hello peterpan; I am new here also. I've had epilepsy for almost 45 years, starting when I was 10 years old. I have tried almost every med on the market, but the only one that has helped is Keppra. It controls my tonic-clonic seizures, but not the simple and complex partial. I have tried the vagal nerve stimulator, have had a resection, and tried again in November; but they found the area was too large to remove. I wish I could help you more, because I know what your daughter is going through. I live in NC. I had both surgeries at the University of Virginia. Dr. Nathan Fountain was my neurologist. Wake Forest University is also a very good hospital (level 4). I took part in clinical trials there back in the 1980's.