i'm 33.
oh and one other thing that doesn't make sense to me and i'm going to talk to my neurologist on the 25th about...if i don't have any form of MG or CMS then why is that i take 180mg of Mestinon and have no side effects. if i didn't have something going on (i.e. i was "just" depressed) then i would be so ill from the medication it would rediculous.
nothing adds up from that doctors diagnosis. i can honestly say that i am oopen to the possiblity that i don't have MG, that would be wonderful, but if that's they case then i want him to prove it to me. which of course he can't cuz he's talking out of his buns. so i'll move on...neeeexxxxttt!
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Originally Posted by AnnieB3
No, it wasn't your fault at all. And I'm sorry the appointment went that way.
I am seriously starting to wonder if neurologists get some kind of pay back by not giving an MG diagnosis. Or any diagnosis.
While this neuro "may be" an MG expert, he is NOT a CMS expert. How did he explain the biopsy results? Or did he think your muscle is depressed too? 
How old are you, if I can ask? I'm 52, have MG and am depressed. Why am I depressed? Because I have MG and it won't let me do what I want to do!!!!
His conclusions were not very scientific, especially since he didn't appear to give you good enough reasons why you don't have MG. You may have one of the CMS's - didn't he even consider that? It is SUPPOSED TO BE considered when someone is seronegative and the clinical exam (and biopsy) are positive for destruction in the NMJ.
I literally cannot handle how you were treated. You weren't at fault and this guy was "showing off" in front of the students or residents, whichever they were. I'll bet you an EMG he was.
Do you have a full copy of the biopsy report? Are you going to send it and your biopsy slides to UC Davis and be seen there?
Listen to your instincts. There is something going on beyond any "mental" problem!  All neurologists aren't psychiatrists first but they sure do act like they are.
Gather evidence. Take a deep breath. See a neuro-ophthalmologist if you haven't. See a shrink to prove you're fine. Get breathing tests. Get some ice cream. Get that biopsy result. Then go get some help!
Annie |