Welcome Codie!
Before I found this neurotalk site I had not talked or met with anyone else who has MG either. i have found it extreamly helpful to have this as a resource. regardless of where you are in your treatment it is nice to know you're not alone and that the people in this group face a lot of similar challenges.
it helps to hear/read everyone elses experiences, i think. i feel like i've grown a lot over the short time i've been cooresponding with everyone. it also brings me hope.
welcome again. i am so happy to hear you are doing well and participating in that research regarding the thymus. go get'em tiger!
Quote:
Originally Posted by koilover512
Hi, My name is Codie I am a 23 yr old female from Austin TX. I just wanted to say hi to everyone. I was diagnosed with MG alittle over two years ago. I refuse to get my thymus removed and I am in a study in San Anotonio TX. The study is to find out if the removal of the thymus is really needed in cases where there is not a tumor on the thymus. I have generalized MG. When I was diagnosed with MG I had already had every symptom in the book to the point where the bottom part of my lungs were no longer expanding. I had to have IVIG treatment and be on prednisone for a year. Two years of treatment and I am as normal as normal could get when it comes to MG. The only medication I take is half a pill of 60mg mestinon when i need it. I am very happy to of found a forum to where I can talk to other people with MG. I have never met another person with MG. EVER! I hope I can learn from other people and help anyone who needs it.
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