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Old 01-13-2011, 04:20 AM
Poetist Poetist is offline
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Join Date: Aug 2010
Posts: 109
10 yr Member
Poetist Poetist is offline
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Join Date: Aug 2010
Posts: 109
10 yr Member
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I just want to add a caution here about tumors on the thymus. My CT scan and MRi didn't show a tumor either, but when I had to have some swollen lymph nodes biopsied and they were going into my chest, I had them remove the thymus also (being as they were there anyway). This was 5 years after diagnosis. Turns out I had a Stage II malignant tumor in my thymus. Fortunately, they got clean margins, but I had 28 radiation treatments, just in case.

So a tumor doesn't always show up on traditional testing.
I know. That's the scary thing, and I've met a woman, who had her thymus removed in 1976, when it was the mandatory thing to do, even though there was nothing on film that said tumor.

Well, after they operated, there was the tumor in plain view.

Anyway, she told me if she did not remove the thymus, as the policy it is these days, her doctors told her she would have had only lived for one year. Now, she volunteers at the MG clinic, and she urged me to get my thymus removed, which is another battle and the reason why I am going to the MG clinic.
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