I just wanted to add my "two cents" to this:

I keep hearing and repeating myself, that we want a cure, we want
not to have to deal with these horrible side effects, and symptoms.

And the things that seem to help th most with all this are most
consistantly for the most number of people are very basic.

laugh a lot, love a lot, pursue your curiosity by growing as an
individual and being a better person. learn something new daily.
eat healthy, get as much exercise as you can. drink lots of water.
breathe fresh air deeply. grow in your faith, forgive others and
yourself, find some way to connect, touch or observe children
to renew your spirit, push your limits to create something
uniquely yours such as sculpture, pottery, painting, gardening,
writing, whatever your talent is or find your talent & explore it.
take charge of you own health. Keep learning about clinical
trials, others experiences who were successful, other doctors,
you are your own best advocate, so be it. and Never GIve Up.