Thread: New MG Info
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Old 01-17-2011, 08:33 PM
Stellatum Stellatum is offline
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Join Date: Feb 2010
Posts: 1,215
10 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
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Wow, TWO new tests for MG! Scary and exciting. Scary because I would really hate to test negative again on a whole new test...and throw my hard-won diagnosis into doubt. So I don't think I have the guts to bring these to the attention of my current neurologist.

But how exciting if these tests could be used to diganose other sero-negative, inconclusive-SFEMG patients! What a step forward that would be. I have the impression there are a lot more of us out there than is acknowledged.

One of the observations that got me diagnosed (I am seronegative, have atypical symptoms, and came out borderline on two SFEMGs!) is that a neurologist saw Cogan's lid twitch in my eye. That is surprising because I have only very mild eye symptoms--just a little eye strain here and there (it used to be worse, but I now think that was a side effect of the Mestinon). So maybe this new pupil test would show up even in patients who haven't noticed any eye symptoms.

Abby
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"Thanks for this!" says:
AnnieB3 (01-17-2011)