Quote:
Originally Posted by Snoopy
missj,
Even though you can find basic stats and facts about MS, in general many of us will not "fit" into those stats or facts.
In my case: I have had 5 exacerbations in the almost 26 years of diagnosis...not the 1 or 2 a year.
I have numerous c-spine lesions and a couple of brain lesions but nowhere near the amount you listed.
I certainly agree with exercise and/or Physical Therapy being helpful for my MS.
|
I couldn't tell you the number of lesions I had, the radiologist just said, "A lot". My neurologist said, "When there's a significant load, they don't bother to count". So I must have a good pile of the suckers.
With that said, I was guessed to have MS 5 years (at least) prior to my diagnosis almost 3 years ago. So say I've lived with MS approx. 8 years now, 2 relapses, and my symptoms (despite the amount of lesions) have been sensory only.
I saw my neurologist today who said, "I think you just got lucky" (about the fact that I'm stable and not on a DMD or Ty... though he tried to get me on either or today and I held firm).
Have to agree with Snoopy. We're all so very different with our diseases. A coworker has as many as 2 relapses a year, so maybe she's accounting for my lack of them?