Thread: New MG Info
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Old 01-17-2011, 10:37 PM
Annie59 Annie59 is offline
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Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
10 yr Member
Annie59 Annie59 is offline
Member
 
Join Date: Jul 2010
Location: Live in upper midwest
Posts: 439
10 yr Member
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[Do you think that myasthenia can look like severe eye strain? Annie59



QUOTE=Stellatum;735875]Wow, TWO new tests for MG! Scary and exciting. Scary because I would really hate to test negative again on a whole new test...and throw my hard-won diagnosis into doubt. So I don't think I have the guts to bring these to the attention of my current neurologist.

But how exciting if these tests could be used to diganose other sero-negative, inconclusive-SFEMG patients! What a step forward that would be. I have the impression there are a lot more of us out there than is acknowledged.

One of the observations that got me diagnosed (I am seronegative, have atypical symptoms, and came out borderline on two SFEMGs!) is that a neurologist saw Cogan's lid twitch in my eye. That is surprising because I have only very mild eye symptoms--just a little eye strain here and there (it used to be worse, but I now think that was a side effect of the Mestinon). So maybe this new pupil test would show up even in patients who haven't noticed any eye symptoms.

Abby[/QUOTE]
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