Tracy, I am so damn sorry for what you went through. Nothing to indicate an MG crisis? Oh, yeah, there is.
That idiot may have been referring to your total lung capacity or vital capacity, which is not the "absolute" criteria they should be looking at. Obviously, your local hospital is in need of educating. A MIP of -30 is seriously low and that combined with the inability to squeeze someone's fingers is enough to be admitted to the ICU. And I mean immediately. They should also have done an arterial blood gas. Did they do an oximetry reading? BP?
When I went to urgent care because I wasn't doing well, I thought I was squeezing the doctor's hands really hard. I wasn't doing it at all. I got admitted to the hospital immediately.
There is no way to tell how quickly someone with MG will go downhill. You need to call your neuro's office and tell them how bad off you are. This is getting ridiculous and I'm scared for you.
DO NOT do anything but rest. Don't type, don't make food, nothing. I'm being very serious.
Ask your husband to print this off to take with you next time. I'm trying to find other useful articles for you. Specifically, look under "Management."
http://qjmed.oxfordjournals.org/content/102/2/97.full
https://wiki.umms.med.umich.edu/disp...sthenic+Crisis
http://journals.lww.com/smajournalon...risis_.24.aspx
http://onlinelibrary.wiley.com/doi/1...mus.20403/full
Post Graduate Medicine had a good article but they apparently took it off the web and you have to pay for it now.
You need to discuss oxygen and/or bi-pap with your neuro too. You need some help with breathing or you will go into a full blown crisis. As far as I'm concerned, you are in a severe exacerbation and can go downhill any time. Nope, don't have to be a doctor to call that one!
http://www.ncbi.nlm.nih.gov/pubmed/18195139
At the very least, this guy should've prescribed Mestinon for you. I cannot believe you haven't been given that yet.
Your neuro can prescribe Mestinon over the damn phone in the MORNING by faxing it into your pharmacy. And I seriously think he personally has to admit you to the hospital, which he can do.
If anyone has any other info, please add it!
Tracy, This doctor was wrong. You should've been admitted to the ICU. I'm really worried about the condition you are in. You sound like I was during my crisis. Please, I know I already said this but don't do anything. I couldn't even shower for 2 weeks after mine. Gross but true. Be careful.
I hope you will get better soon but it won't happen without everyone helping.
Annie
The PDF's are for both intubation and extubation, etc.
