Quote:
Originally Posted by cindi1965
You have come to the right place, sweetie. I wish my kids would have tried to find out more about RSD when I was first diagnosed. What a lucky mother you have! Having the compassion to see that her disorder is hard on her is very touching.
Everyone with RSD are like snowflakes...no two cases are alike and treatments that help some people don't help other people. Tell your mom to keep searching and don't give up on finding the right "cocktail" to ease her pain. I take Xanax, Norco, Celexa, Elavil and Baclofen and this combo together is making me more functional than all the other meds. I have never tried the ketamine because no doctor in my area will even consider it. I'm not quite sure if it will work and as long as my other drugs are working than I am okay. Please never hesitate to come here and ask anything. I love this board and it has been my saving grace. Each night I pray for everyone and now you are on my list..  |
Your mom needs to learn the things that make it worse and which make it better. Get as much exercise as can be tolerated (this can cause pain later) and avoid stress.
Try to start medications and new procedures one at a time to see what the effects are. Most of us need to address dietary issues and things like salt or additives can be problematical for us.
Having someone around who cares and is trying to understand is very important so your mom already is one step ahead of her troubles.
I wish you both the best.