Quote:
Originally Posted by Grammie 2 3
I found out yesterday that I was positive as I said, I will not stop Tysabri. It would have given me peace of mind to be negative but I still feel the blessings of Tysabri for me out weigh the odds of pml... my neuro agrees.
Yesterday I had #52
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I know you'll remain vigilant. You're still a trailblazer!
We don't know that having a positive or negative response makes any difference. We don't know how or when we are exposed to the JC virus. Someone could test negative now and be exposed and test positive six months from now. There may be other factors that make a person develop PML.
I hear that old TV broadcast in my head sometimes. "This is a test of the emergency broadcast system. This is only a test."
I get the stern warning at every appointment and know to report any changes in thinking, affect, vision, right or left sided weakness, etc. despite having a negative test result.