[QUOTE=Dr. Smith;736116]Went to the follow-up consult to all the testing by the neuropathy clinic at Strong yesterday. Strangely, this is the second doctor in a year who's commented that he knew people who'd pay money for my test results. They can't find a thing wrong - no abnormalities, no subtle indications/flags - nothing (no pre-diabetes, no celiac, no sjogren's, no nothing). Perfectly healthy adult male. (So why do I have this?) PN is all this guy does. He said he couldn't find a reason to go any further; he could do a million dollars in testing and still not find a reason. He did say I could try R-lipoic (after downplaying it last time) but not to expect too much, if anything. Then he gave me his boilerplate PN shpiel and cut me loose. Can't say I didn't see this coming.

Of course I'm not delighted, but like a lot of you other folks, our insurance coverage has been unilaterally cut, and we can't afford to travel across the country in search of answers that still may not be there. Time to get philosophical, I spoze....

I asked for and got a scrip for 100 mg gabby as needed for the bad days/flares. Took one last night and was able to participate in furface's obedience class instead of just watching from the sidelines. Word to the wise: Gabby doesn't help one bit when 80 lbs. of canine happy feet point load on peripherally neuropathic toesies.... (-Expletive Deleted-)



As you know, the word idiopathic has always frustrated me, but now as I wait for more test results to come in because of my high cancer marker (ca19-9.), I can only hope I hear that word again. The truth is, it is good news, it may be frustrating to not know what is causing this, but at least you know all the things you don't have.

I have suddenly become one of those "people who would pay for good test results."

CT of the Abdomen & Pelvis on Thursday...............

P.S. What do you take besides 100 mg. of Gabby (as needed.) That is a low dose, I take 1200mg/day.