Member
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Join Date: Dec 2010
Posts: 166
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Member
Join Date: Dec 2010
Posts: 166
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Ok, wow, I had no idea -30 was bad. They did one other test where I blew out all I could into the thing, but I can't remember the results, 175 or 1.75 or something like that? I had no idea this was bad. I know I am very bad off. I haven't had a shower in over a week and as it is my husband has to help me. I can't move. I barely touch the computer, I sleep at least 14 hours, I am incapacitated. my breathing does feel better but I'm not getting out of bed much at all. I cannot walk alone but for a few steps. I have never been so weak in my life. It hurts to type. I can barely talk.
My neuro has no admitting priviledges anywhere. I see him on Thursday. The ER doc freely admitted he knew nothing about MG but he ran my test results by the major medical center and they advised him. My hubby called the MDA clinic today and they said they would call back with appt. I will look and see if that hospital has an ER, they have a whole MDA clinic there. I can only count to 8 now but don't know what to do. How do you know when you are in crisis? What happens? I told the ER doc about the counting thing and he said I was counting slowly. I count like 1,2,3,4,... He asked if I ever had a Tensilonn test and I said no, I had positive blood test for AChR. He said, but you never had a Tensilon test? Because his ONLY experience with MG was doing one of those for diagnosis. HE was nice and would have transferred me to UMASS but didnt really think it was needed. I don't even know what neuro is going to do Thurs.
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