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Member
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Join Date: Jul 2010
Posts: 458
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Member
Join Date: Jul 2010
Posts: 458
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The surgeon is avoiding me and the nurse is practically refusing to let me come in and see the doctor. Seems as if they know they made a mistake and don't want to own up to it. I don't know.
Went around the nurse and made an appointment to see the surgeon on 1/31. The solution they keep giving me is to be reprogrammed. That won't do anything! I spent an hour and a half with the rep yesterday reprogramming and it didn't change anything.
As I said to my friend, think of it as a house. You're building a house and you are trying to get electricity in the living room. The wiring is in place and electricity works in every other room. Is messing around with the wiring in the bedroom going to make the lights come on in the living room? No! The wiring has to be in place in the living room!
Same thing. If the SCS isn't set to reach my feet, changing programs for what I feel in my legs isn't going to make it reach my feet.
I don't know why I can get that, but everyone with a medical degree (except my PCP, who is powerless in this situation) can't get that.
The solution I've been given is to go be reprogrammed again in two weeks. That isn't going to change anything!
Frustrating.
Anyway, tomorrow morning (in 11 hours), I go in for surgery to have my gallbladder removed. So for now, I'm taking my mind off the SCS mess. I've turned the stimulator off and am going to focus on this surgery and healing... and then will try to deal with this mess when I am feeling better. Just wanted to update everyone here.
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♥ "Hope is more than a word; it's a state of being. It's a firm belief God will come through. Life brings rain... hope turns every drop into the power to bloom like never before." -Holley Gerth ♥
My name is Sarah and I am 25 years old. I have a lot of chronic health problems. Peripheral neuropathy and POTS (postural orthostatic tachycardia syndrome) keep me bedridden the majority of the time. I also struggle with degenerative disc disease, disc desiccation, spondylolisthesis, arthritis, polycystic ovarian syndrome (PCOS) with insulin resistance, allergies, sound sensitivities, and other health problems.
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