[QUOTE=emptydepth;688395]Okay, so ive had my RSD for about two years now, i have it in the side if my right knee and sometimes in my shin. i got it from sports and an accident, im actally not sure what exactly caused it. Anyway, i desire more than anything to be able to walk normally again, ATLEAST. Fortunately enough, my Rsd hasnt spread to anywhere else in my body.
ive done most everything to try and fix it. ive had several lumbar Nerve blocks, ive tried physical therapy, ive tried a tenz unit (still use it on those occasional days with random nerve spasms) Several Seizure Medications, waiting (maybe not long enough). Anyway, ive tried everything short of a Ketamin infusion and Amputation. I was just wondering if anyone here had either heard stories of Amputations or had actually had one done? Or if people had any advice as far as treatment goes?
As a side note, i am slightly concerned about cost but only because im a
minor and im unsure what my parents insurance will cover. Id like to know
what im dealing with first hand before i go to them for fear that theyll reject
it.

While i may be concerned with price of amputation and prosthetics, the price
of walking and atleast being able to function semi-normally is priceless to me...
Thank you for any help you provide[/QUOTE

I completely understand the place in your life that you are in. I have been there myself, heck, who am I kidding, I was there just a few weeks ago. I understand the stage in you life when the only
only thing that seems to be your next option is amputation & I am so sorry that you are at that point. But let me tell you what all FOUR Dr's at the Mayo Clinic told me just a few weeks ago when I asked them if that was an option to help my pain. They all told me that I would still have ALL the same pain of the RSD without the limb.

PLEASE get advice from several Dr's before continuing with this plan. I know how hard this disease is and how much it takes from you. I would suggest that you get a good Pain Management Dr, Neurologist & finally a therapist. NOT BECAUSE YOU ARE CRAZY!!! Chronic pain has been medically proven to cause depression. A good Psychiatrist linked with a therapist has helped me in sooooo many ways to learn how to deal with the many ways this disease has changed my life. It has helped me dealmwith the changes, cope with the pain & the LOSS of me!

I am truly sorry that younger going thru this, but remember that you are NOT ALONE! May God bless you with peaceful sleep.
Gentle hugs, Renee'