Quote:
Originally Posted by DesertFlower
AnnieB, that's what my neuro said...I still haven't figured out how a person is supposed to live a normal life, because nothing is normal about MG. I like the shaking-the-head-no smiley. 
Abby, I am like you...I don't think I am generally stronger, just learning new ways to live and to react. |
This is a question that really bothers me. how many patients do live a normal life with MG? and by normal I mean real normal.
Because it makes a big difference, if people like me are a very small minority- a very rare extreme of a relatively rare illness, and then it is very hard trying to convince of the importance of finding better treatment approaches, or if most people with MG are like that.
I am not sure any one has the answer. I am also not sure that there aren't many more patients with MG like me (and Chloe Atkin's book made me think it ever more) that don't even know they have MG as this is not even considered, or that their MG is "ruled out" even if it is suspected.
alice