Hi Sally and Agate:

Sally my H does not take LDN - he refused because he didn't think it would really help. He just takes a small amount of baclofen for spasticity and some tylenol for pain. His biggest issue so far has been the burning pain he has in his feet.

Agate thanks for your post. I know some people progress quickly with PPMS and end up quads while others fare better. I just hope that since H has progressed very slowly since dx that he will be old by the time he reaches the end and not have to deal with anything bad for too long. In the meantime we can hope and pray for a treatment that stops progression.

hugs

M