Quote:
Originally Posted by jana
At my last appointment, I had a very intelligent young resident interview and examine me prior to seeing my doctor. She asked how MG has impacted my life. I told her that I had changed -- my interests/hobbies were now focused according to my current, limited abilities -- my life NOW is completely different from my life THEN. She seemed to understand. I think she will become a good doctor.
After reading this thread, I wonder........................am I part of the problem?  Have I adjusted tooooooo well? When I go to my MG specialist, I no longer complain about what I can't do -- I've accepted my limitations -- I'm happy for what I can still do -- and rejoice for the little improvements (usually temporary) that I see along the way.
Attitudes like mine really COULD be confusing to doctors. Right?? |
I stayed so confused Jana that I don't complain when I go to the doctor either. He asks questions and I answer. Once in a while, I will ask his opinion on something but that is how I am. He is really trying to help me and honestly, I don't know what to say. I am taking the meds and regrouping with tasks. I usually just go in with a good attitude and smiling because he has always been on top of things and I don't won't to rock the boat. I did ask him about the crisis I always hear about and he said if I have not had one by now that I would not have one. So I thought, well, I guess I can handle the rest as I was doing before I was diagnosed. With him monitoriing me every few months and monitoring my meds, I don't know what else he can do for me. My attitutude confuses a lot of people even family because I don't lay around sick 24/7. My doctor told me not to because that was more harmful due to getting muscle atrophy. On my days off and I am really wiped out, I just lie on the couch and rest. I am aware of my every move. I told someone one time this was a battle between me, myself, and I, and there was nothing they could do to help me. What else is there. If I ever have a need where I really need someone other than my spouse, I would not hesitate to call.
