I have a little different thought ....

Since I don't want any drugs other than Mestinon - - hopefully forever---I am somewhat careful about detailing lifestyle changes at appointments - - - - cause I know that will invoke the discussion about trying the drugs I don't want to take!! (We started down this path once, and I'm not willingly going to go there again.)

If (when) I am either unhappy enough with my lifestyle...or if I find myself in a dangerous medical situation...I'll be the first to re-evaluate with neuro. But until then, I keep my own measurements.

Every six months, I reevaluate my abilities on a few certain tasks and lifestyle things so I can be honest with myself about if I'm better or worse or about the same. A few things have surfaced that I find interesting...like I am always 'better' in the June to Jan six months. Really?? or mentally?? Related to hours of sunshine? or MG? Related to more activity? Related to sheer coincidence??? Who knows...it's just the way it has been.

The funny thing is that until I do my 'evaluation' and compare it to the previous ones -- I really don't appreciate the subtle adjustments. And perhaps, as individuals, there is a tendency to overswing the pendulum depending upon what we wish the outcome to be. That seems perfectly human to me. Perhaps some of us could do more and some of us should do less. But the point is - - - it doesn't matter!

I think we do the best we can for the way WE feel about our life and lifestyle...and that just needs to be good enough!