Alicemd, thank you for this. I have been so sick with the severe pain in my face from the myositis and breathing worse causing not only a bad sore throat but loss of my talking I am having flits of despair. That scares me but this my only option is to STOP and rest 24/7. No talking no walking no laundry barely online today thru extremely blurry eyes. And worst no one to hold me. I cant remember the last someone held me.

Annie59


"Also, take into account that patients like Chloe Atkins that never fulfill the diagnostic criteria for myasthenia are not included in those statistics!
And I do not think any one knows (or cares to know) how many patients like her there really are, that do not have the emotional strength required to fight this, and just succumb to their illness and live (or die) with the diagnosis of "functional/coversion disorder".

If you take into account that about 50% of patients with a neurological illness (eg-those that are referred for evaluation in a neurology clinic, by other physicians) are diagnosed as conversion/functional disorder, because like Chloe Atkins they do not have "objective" evidence for their illness, you may have some possible idea of the extent of this problem.[/QUOTE]