You are not alone. I have anesthesia dolorosa. I've had Gamma Knife and a failed MVD for treatment trigeminal neuralgia. My neurosurgeon told me the nerve just needed to heal. That was ten years ago. They really dont want to be reminded of their failures. So the sooner you disappear the better they feel. I have seen several neurologists since then who love to prescribe drugs. Many of them I had already tried but to be a compliant patient I tried again. I keep hoping a new treatment will appear. I have never been officially given the diagnosis of anesthesia dolorosa. Its like they don't want to say it. Why is that? Why did I have to read about it in a forum and figure it out myself? More than anything I want validation. That what happened to me was awful. That life is unfair. Would I feel better? Maybe......maybe not.
Im sorry you have AD. I wish you the best of luck.

QUOTE=Kewlbutterfly;345657]Hey all,

Long time since I last posted in here but, I finally got the official diagnosis. Anesthesia Dolorosa.

I don't know if you all remember that I had an MVD procedure done in Aug of 2006 and it had failed leaving me in more pain. My Neurologist now is Neuropathic Pain Management Specialist, he told me that this was caused from my Neurosurgeon damaging my trigeminal nerve during the MVD procedure. Now, I am in constant pain like when you go to the dentist and the numbing stuff starts to wear off but this never does, it feels like pins and needles yet it never ends. My Neurosurgeon wanted nothing to do with me after the surgery and now I know why! He kept telling me to "give it more time to heal". The bad thing is I have no "physical" way to prove it because you can't physically see the damage. (It's not like he cut the wrong arm off, it is worse no one can see my pain) Anyways, I am posting to see if there are any other people out there that have had the same thing happen to them.

Anyone else out there that is suffering from Anesthesia Dolorosa after a MVD procedure? I would love to know that I am not alone!!![/QUOTE]