Almost everytime I go to my MG specialist, he talks about the need for a support group -- an "in-person" support group in our area. I tell him that I have on-line support -- and he is grateful for that. I think that "some" doctors realize that they do NOT have all of the answers or best suggestions for living with MG. The ones who talk about "normal" lives are most likely quoting a textbook -- IMHO, a poorly written textbook.

I'm sure I've said this here (I know I say it all the time in my "real" life) -- I learned VERY early on that STRESS was the WORST thing for MY MG. There are types of stress that you cannot avoid:
*if you are still working
*if you have children (especially ones still at home)
*if you have a spouse who doesn't understand or care about your illness
*financial worries
*aging parents
(these are all I can think of in my early morning "brain fog" -- I'm sure there are more)

BUT, if you can get a HANDLE on all of the OTHER stresses in your life -- the things that really do NOT matter -- you might be able to help your MG to calm down.

I was SOOOOOOOO Type A -- from my hair, make-up, clothes, house, car, job, vacations, etc. -- I was totally OCD about almost EVERYTHING. I have let almost ALL of this GOOOOOOOOO! My house is now a mess -- I hardly EVER put make-up on -- don't have the arm strength to wash the car. WHO CARES?!?!?! I have LEARNED what is important -- God has seen to that!!! All of that talk about "stopping to smell the roses" -- I do!!

DesertFlower, I know that what I've said here sounds SOOOOOO simple -- and it is anything BUT!! My "new" life is 180° from the "old" one. It is almost like I got hit in the head and had to learn everything from scratch. It took a LONG time to "fall" into my "new" routines.

Like you and Sue, I'm not taking anything other than Mestinon -- so lifestyle changes were my only option -- I was counting on them to work -- and so far, they have! Of course, I'm NOT running marathons -- or dancing at parties -- or exploring the Amazon -- but, I am OK!