I learned about POTS when I was going through major blood pressure swings and tachycardia and researching online what could be wrong with me. I saw that they use mestinon (of all things) for treatment. They had removed my mestinon to assess my "true strength" for thymectomy surgery prep and all these cardio symptoms started. My sx got better when we added back the mestinon!!

Are you using mestinon? If so, is it helping? I really hope so. If not, I hope they find something soon for you. It is awful to deal with those swings in heart rate....

debra