Thanks for your messages.

Debra - yep I use mestinon although I haven't taken any for a few weeks as I wanted the tilt table test to be as dramatic as possible.

The problem is I don't tolerate mestinon too well even with the probanthine. I have developed symptoms of gastroparesis and as the mestinon stimulates my gut it gets very painful and I end up having to take morphine which makes me sleep! LOL

I have already upped my fluid intake, I drink a lot anyway over 3 litres a day as I have excessive thirst - not diabetic been checked numerous times. But I have found out excessive thirst is a symptom of autonomic dysfunction. Ive also increased my salt in take, as much as possible. So I just need to wait and see what the doc suggests in 3-4 weeks time.

Desert Flower - cheers, one diagnosis down, a couple more to go but Ive got my foot in the door now and hopefully I am no longer considered a nut case!

Love
Rach