Tracy,
You need to go back to the ER. You cannot be alone right now. Do not let them brush you off.
Ask for a patient advocate...As for the Mestinon, it's very easy to OD on it, but I think your best bet is to get a pill cutter and try adding a quarter of a pill an hour until you start to feel a little relief. Maybe up to a total of two pills (one full, and a quarter, plus a quarter an hour later) A quarter of a pill makes a huuuuge difference for me. I take 2 timespan mestinons about 7-8 hours apart, first one upon waking. I supplement with a quarter (lately I'm up to a half pill every hour to 30 minutes) of the quick release (60mg tabs) whenever the weakness sets in throughout...My normal weakness is upon exertion, so if I feel the heaviness start to set in while resting I know it's time for a boost. I have taken control of my dosing of my quick release because I know what overdosing feels like (qick heaviness through whole body within 20 minutes of taking pills, with excess mucus in chest and saliva in mouth) moving helps it fade if you do overdo it, or lots of water. Please get yourself help...Also do you have someone that can call your ins and ask for someone that can act as a contact...(they will help you get fast approval for referrals, override for coverage to stay in the hospital, rides social services help...I was set up with one when I was diagnosed. My ins company called and offered me one...I cant remember what it's called, but they are your front line help in dealing with the red tape thru your ins co.) I hope this finds you strong. my email is
sugrkiss@hotmail.com and I can give you my number if you need ot talk.
Jessica