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Old 01-22-2011, 07:10 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Yeah, hop to a GOOD hospital but do it via an ambulance. They will give you O2 in the ambulance and then continue that into the hospital. Plus, they will start an IV line in case then need to do the IVIG you didn't get this past week.

You can't drive. Period. If your health ins. pays for an ambulance, just dial 911. That may be the only way they take you seriously.

They can call your neuro from the hospital. AND you can go over the fact that Mestinon isn't quite working yet and that you need more help.

Ditto on what everyone said.

They also need to monitor your heart and O2 saturation, possibly overnight. I will bet you money that your O2 saturation is dropping while you sleep. That is a DANGEROUS situation if it drops too low. Mine dropped to 66% during my crisis and I only slept for about a half an hour when they checked it during a "mini sleep study." Hypoxemia (low O2) literally damages tissues like your brain and heart.

And get those arterial blood gases (ABG) and FULL pulmonary function tests done, with MIP and MEP!!! But only after you feel better because just doing those tests (PFT's did, not ABG's!) during my MG crisis wiped me out. And breathing in or out hard can stress out your heart. A lack of oxygen is really hard on the brain and heart.

I hope you will get help. They need to admit you and take care of you until you are BETTER. This is such stupid doctoring I can hardly believe it.

Hang in there!!! You WILL get better with the right help.


Annie

Last edited by AnnieB3; 01-22-2011 at 07:41 PM.
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