The real problem here is that they haven't yet 'invented' all the tests that there are to invent in order to unravel some of these mysteries. So when they say that ALL your tests have come back negative it's because they haven't tested for the right thing/s either because the test doesn't exist yet or because they give up too soon before eliminating all the possibilities!

The reality is that you need to keep your radar on alert for future changes in medical advancement, as the doctors/neurologists you have seen certainly wont chase you to up to tell you about them.

I’ve been recently reading a bit about Sensory Ganglionitis which unfortunately can only really be eliminated as pathophysiology underlying the various forms of neuropathies/polyneuropathies during an autopsy/post-mortem which is a touch too late for us! You may want to look at http://www.medlink.com/medlinkcontent.asp (part article).