Originally Posted by sugrkiss

I do! It started in my legs and my Neuro thought it was RLS...then my arms back and neck started. My muscle pain feels like I worked out too hard, or like after a deep tissue massage if you don't drink water...very achy and sore. Puts me in a pretty bad mood too...I'm currently taking lots of Vicoden and advil, also seeing a Pain management specialist who put my on Nuerontin (sp?) to get me off the vicoden...So far the stupid Nuerontin isn't working, I'm supposed to take 2 pills 3x a day, I started with one at night, and add another at night, then add one in the afternon and so on. After I got up to 2 pills 2x a day, I tried to go with out the Vicoden, and ended up crying with so much pain...so I called and told him it wasn't working, but he insisted I go up to the recommended dose...I did, and still not helping! Have you seen anyone about the pain? Supposedly our disease is painless, but the more pole I ask, the more seem to have the same symptoms...I think someone needs to re-write those stupid information pages...I read one today that insisted most people with MG were able to live a normal life and continue to enjoy the hobbies they always have. Ha! I'm scared to go to the grocery store by myself!
Jess