Thread: Hello Everyone!
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Old 01-23-2011, 03:58 PM
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sugrkiss sugrkiss is offline
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Join Date: Sep 2009
Location: Orange County, CA
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sugrkiss sugrkiss is offline
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Join Date: Sep 2009
Location: Orange County, CA
Posts: 112
15 yr Member
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Quote:
Originally Posted by motorcycle diva View Post
Sounds like you have ran into the same thing I have. I want to know what causes the pain and then treat it. Your description is right on target. I feel it in my larger muscle groups first and then head to toe. It is 24/7. I have never been one to require much meds. Taking two Tylenol was a big thing for me. Now I am taking a Loritab to sleep get some relief so I can sleep at night. I feel it is related to or originated from one of the meds.


I don't know about any of my meds causing it...I've tried to think of every possibility. I do take a small amount of Prednisone, Imuran, Mestinon...My Neuro hasn't even tried to find out what might be causing it..He gave me the Vicoden after I was already taking it for after my surgery..It helped me then so he kept me stocked with it. When I started taking too many he sent me to the pain mngt Dr., and he's trying to find something that helps better without killing my liver. To me, it feels like poison leaks from my muscles after they are worked. Even if I sit on the couch all day, just a trip to the bathroom is enough to set it off. And if I'm unfortunate enough to be in the middle of something when it's time for a boost from my mestinon, it quadruples, and even the Vicoden isn't enough.

I did come accross something lately that I wonder if it all might be related, possilbly even another condition. I have found that topical anasthesia dosn't work the same way for me anymore. During my labor with my baby, 2 epidurals wouldn't take, and during my recent dental work, I used way more Novicain than it should have taken. It kept wearing off within minutes rather than the hours it should have lasted.

And, just last night (due to the arrival of my monthly gift ) My legs were unbelievably weak, and the pain was terrible. So my pain is definately related to my muscle weakness. I've also wondered if it could be my muscle wasting away and releasing some kind of chemical?

Jess
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