Alice,

You've said here something like what I'd like to hear from my neuro, or at least a recommendation from him of someone appropriate for me to talk to, someone who specializes in this sort of situation. I'd like him to admit that things aren't necessarily normal for me just because I have a treatment, maybe even tell me of examples of what other people have done, give me some sort of hope. I'm overwhelmed with figuring out how to live a new life, not truly depressed, although if I continue to be overwhelmed I think it will turn into depression. For now I still have some hope of learning how to deal with this, but I'd like to have a doctor who has hope rather than some unrealistic expectation. It wouldn't be helpful to treat depression for me, but rather to find solutions to the issues MG has brought into my life.

I have a phone number for another neurologist who specializes in MG, I'm going to make an appointment for a consultation. I really don't want to be doctor searching, but I have decided that it doesn't hurt to at least meet him.

I am not a doctor but it seems to me that it is pretty useless to continue seeing my current neuro now, the only thing he is good for at this point is for continuing my Mestinon prescription. He was wonderfully helpful in getting a diagnosis and I am greatly thankful to him for that, but I have reached a point where I need a different kind of doctor. It seems to me like I have become my own doctor. Why should I keep paying him so much money just to write a prescription? If I am paying him shouldn't he be helping me? I don't expect much, maybe a suggestion now and then, or a kind word of encouragement to keep working on finding new ways to live. (as a side note, I told him of how I found that a change of diet has helped, he told me that eating different foods won't have an effect on my MG, but I know that it does! ).

I don't need to be happy all the time, and I enjoy living life with a whole range of emotions, feeling sad makes the good times all that much better...I'd just like to be able to be happy sometimes and not spend most of my time worrying about the future and trying to make it through today.

Thank you for these kind words Alice. I suspect your patients are thankful to have you as their doctor.