Rach73, I will be interested in how this works out for you. My internist told me I have POTS and likely low blood volume which can go with it. This came as a response to my daughter telling them how I get so much better when I get IV fluids...salt and water. The info on it from the medical site Update is really good and my doc gave it to me to educate me. It tell about the mestinon use at 35-45 mg a day for treatment. Do you know that is all it takes? You wouldnt have to take the 60mgs and such for MG. Dr Low at Mayo is the one who did the researcxh on this and his study I think is still in progress.

Unfortuantely in trying to see a specialist for this in January I got the first of a string of docs at the university that has me in this place I am in unable to get treated there. I was stunned when I read his notes. He said he felt I was bringing dizziness on my self by withholding water. Given I have Sjogrens and have to drink to even swallow well first thing in morn that is rediculous!! he added that he also thought the symptoms were in part from me hyperventalating. Damn! I have never hyperventilated in mylife. He totally when down the blame the patient route. Unfortuntely he was a neuro so this really hurt. I had to counter his acusations with even my lung guy who I saw after this and thankfully was prepared to do the mestinon challenge that time which proved how great I do on my pulm tests with mestinon in me so he didnt take that docs stuff seriously after that. But others have.

I have alot of symptoms of autonomic dysfunction. Sadly some of the symtpms are anxiety and breatrhing stuff that make it too easy for docs to want to go to the mental route.

I hope you get a good turn out.

Annie59