Member
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Join Date: Sep 2006
Posts: 292
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Member
Join Date: Sep 2006
Posts: 292
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Hands
Hi Lisa,
I know the feeling you are talking about with your hands.
I didn't forget that you are stilll working and that does not help the situaton.
My hands hurt badly also, but my doctor listens to me.
I told him the pain is intolerable and I could not use my hands to do ..... and give your doc a list of what you are unable to do in the evenings.
Write it down if you think you'll forget all of this.
At the time this hit me, I could not lift a glass of water. It sat on the table
with a straw in it. I still have to do that on some days. Moving a finger hurts so bad - all the way up my arm. I know what you go through.
I use disposable soapy wash cloths and disposable cloths without soap because I cannot wring out a regular one.
I tried Botox and it did work well to relieve spasms.
I take a muscle relaxer but it doesn't help the hand spasms or arm spasm, they mostly help me to relax and sleep.
Lastly, I have had to switch pharmacies several times (4) because they have never been paid for 4 years and won't continue to service me.
I get different shaped pills all the time and I don't notice the difference.
Maybe because I burn and hurt all the time anyway, but still get a little relief from the strong meds I do take.
The burn comes through the lidoderm patches but if I take them off, I want to cut my arms off, so back on they go.
I am finding that nothing helps me to the extent I can do things anymore. My family can't believe how much I've deteriorated in a year.
Someday you may have to face the fact that working with RSD is causing you to get worse. Others believe working will help your pain and help you to keep going. Only you can decide which is true for you.
I am sorry you have to go through this too. I wish we both were in that small % of people who get better.
One thing that helps me when I feel soooo bad is to count my blessings and think of positive things. Then I take my meds and go to sleep. True story!
{{HUGS}} HOPE
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